Monday 10 August 2015

Make Sense Campaign

Good day to you all (and every day is a good day),
Those of you who have read my blog before will know that I have been fortunate enough to be treated by Mr Sat Parmar at Queen Elizabeth’s Hospital in Birmingham. Mr Parmar is a member of the Steering Committee of the European Head and Neck Society (EHNS), which is running a pan-European head and neck cancer awareness campaign called the Make Sense Campaign. Now in its third year, and active in over 14 countries across Europe, the campaign seeks to engage everyone –  members of the public, patient groups, healthcare professionals, and Members of the European Parliament. This year, the awareness week is taking place between 21–25 September 2015.
I recently became involved with the campaign and its activities when we realised there was no patient groups in the UK that were concerned specifically with head and neck cancer.  Patient groups are an important part of any process of recovery and coming to terms with diagnosis, so we are working to get this initiative started, and getting involved in this campaign is one step closer. Its a lonely, scary old place with no-one to talk to.
Participating in the campaign this year will allow us to spread the word around the UK by Uniting Voices. In the past few years, the Make Sense Campaign has used a number of different fun and innovative ways to raise awareness of head and neck cancer. This year, the theme of the campaign is #UnitingVoices .There are several ways to participate in this initiative.
How you can get involved!
(1) By participating in their very own virtual choir! The Make Sense Campaign will be filming a formal choir made up of laryngectomy patients, and inviting other people to support the fight against head and neck cancer.
To support this activity, I would like you to film yourself, your family or your doctors/nurses singing to the chosen song! The campaign have selected   John Farnham’s ‘You’re the Voice’ – you’ll remember it once you hear it!
Once you’ve completed your video send it to makesensecampaign@axon-com.com,   they will combine the videos together and host them on their website; and use it during the awareness week.
(2) If you’re a patient, film your own patient  testimonial . It’s really easy – all you have to do is use your smartphone or tablet and film yourself talking for around a minute about how your diagnosis has affected you and how you are overcoming it.
      Once you have completed your video you can send it to makesensecampaign@axon-com.com and post it to your own social media network – but make sure you use #UnitingVoices!
To find out more about the Make Sense Campaign and the activities planned for this year , the 3rd Annual Head and Neck Cancer Awareness Week (21–25 September), visit the following sites:
-          Twitter: https://twitter.com/makesensecmpn
o   @Makesensecmpn
-          GoFundme: http://www.gofundme.com/ufrp7q4
-           There is a lot of information available, and the team behind the campaign are supportive and truly want to support us.


If you have any further questions about how to get involved, feel free to contact me or the Campaign Secretariat at: MakeSenseCampaign@axon-com.com. Any contribution you can make, would be much appreciated!
Best wishes to all,
Chris

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